When he was just six months old, Ann Marie O Dowd noticed that her son Luke was losing weight and not feeding, soon after Luke was diagnosed with the rare genetic condition Cystinosis. Cystinosis causes a build up of amino acids in the body which cause a great deal of damage. Since diagnosis, life for the family has changed, Luke needs medication every six hours, needs to avoid sunlight and needs to carry water with him everywhere. Luke's future is uncertain and it looks likely that he may need a kidney transplant. For the time being Luke's family have set up a charity with other families to raise funds and awareness for the rare disease. You can find out more at www.cystinosis.ie
(3 minutes 55secs)
after fry talked about seafood as raw sewage - I dont think I can face a prawn salad in the med again!
Posted by: barry hughes | 19 June 2007 at 05:04 PM